I know I've been MIA, but I am super busy studying for boards. But let's not talk about that now!
Last week, we were fortunate enough to be able to meet with the RE thanks to a cancellation and DH canceling his business trip. In a rare instance of good luck amidst all the bad luck we've had, this was great. She is running a boatload of tests, including a repeat HSSG for me, and we will meet with her again after we get the results. Which might be a while, since I need CD3 bloodwork and the HSSG early on in my cycle, and I'm going to be traveling a lot the next 6-ish weeks. We'll see. I'm most anxious about the karyotypes. Since we've had 3 pregnancies and none of them had a visible embryo, I'm convinced I have some kind of genetic problem. I'm glad we're getting those done so we'll know for sure.
My RE also talked to me about one of the meds I've been on for my Crohn's since I got diagnosed. I don't talk about it much, but in case you don't know, I have Crohn's Disease. I got really, really sick about 4 years ago and that resulted in a Crohn's diagnosis, after several months of not being taken seriously by a PCP I was seeing at the time. I was started on Remicade and 6-mercaptopurine immediately, and have been on them and in remission ever since. **knock on wood**
6MP is basically a chemotherapy drug, but in a very low dose. Before we started to TTC, I met with my GI who recommended I stay the course and continue on both meds, as there is no evidence that either is harmful (until later in pregnancy, when I would have to stop the Remicade). She said the most important thing was that I was healthy. OK, sounds good.
After my first loss, my GYN brought it up and I talked to my GI again, who again said she recommended I keep taking both. Same thing happened after my second loss, but by that time my GI had moved and I had a new GI, but she said the same thing.
My RE brought it up again, so I talked to my GI at my annual follow-up this week. She still said that there's no evidence it's harmful and that she has had many patients carry healthy pregnancies to term on it, but that she thought after 3 losses it was worth a shot. She thinks it is unlikely that I will get sick again, and says that lots of people do fine on just Remicade, but that if I do get sick, we will re-evaluate.
I'm really scared. I was so, so, SO sick. It was horrible. Now I have very little symptoms and have been doing really well. And I'm stopping one of the meds that has kept me this way. But maybe, just maybe, this will help us get our rainbow. I hope above all else that it does, and I also hope that I don't get really sick again. :-/
Last week, we were fortunate enough to be able to meet with the RE thanks to a cancellation and DH canceling his business trip. In a rare instance of good luck amidst all the bad luck we've had, this was great. She is running a boatload of tests, including a repeat HSSG for me, and we will meet with her again after we get the results. Which might be a while, since I need CD3 bloodwork and the HSSG early on in my cycle, and I'm going to be traveling a lot the next 6-ish weeks. We'll see. I'm most anxious about the karyotypes. Since we've had 3 pregnancies and none of them had a visible embryo, I'm convinced I have some kind of genetic problem. I'm glad we're getting those done so we'll know for sure.
My RE also talked to me about one of the meds I've been on for my Crohn's since I got diagnosed. I don't talk about it much, but in case you don't know, I have Crohn's Disease. I got really, really sick about 4 years ago and that resulted in a Crohn's diagnosis, after several months of not being taken seriously by a PCP I was seeing at the time. I was started on Remicade and 6-mercaptopurine immediately, and have been on them and in remission ever since. **knock on wood**
6MP is basically a chemotherapy drug, but in a very low dose. Before we started to TTC, I met with my GI who recommended I stay the course and continue on both meds, as there is no evidence that either is harmful (until later in pregnancy, when I would have to stop the Remicade). She said the most important thing was that I was healthy. OK, sounds good.
After my first loss, my GYN brought it up and I talked to my GI again, who again said she recommended I keep taking both. Same thing happened after my second loss, but by that time my GI had moved and I had a new GI, but she said the same thing.
My RE brought it up again, so I talked to my GI at my annual follow-up this week. She still said that there's no evidence it's harmful and that she has had many patients carry healthy pregnancies to term on it, but that she thought after 3 losses it was worth a shot. She thinks it is unlikely that I will get sick again, and says that lots of people do fine on just Remicade, but that if I do get sick, we will re-evaluate.
I'm really scared. I was so, so, SO sick. It was horrible. Now I have very little symptoms and have been doing really well. And I'm stopping one of the meds that has kept me this way. But maybe, just maybe, this will help us get our rainbow. I hope above all else that it does, and I also hope that I don't get really sick again. :-/
